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When Would You Have This Talk With Your Kids?

April 23, 2012
25
Parenting.com
How awesome is this?!
© Erin Zammett Ruddy

As you guys know I'm a cancer survivor. I'm proud of that status. But my kids are young and I worry about them worrying about me, so I hesitate to tell them too much about my disease. Because I’m not sick now, I wonder if it’s even necessary to tell them that I was sick once. Why worry them unnecessarily, right? But cancer is a huge part of my life, particularly right now, so it's kind of unavoidable. 

Last week, as part of my big $100,000 fundraising competition, we held a soccer clinic in honor of Ethan Zohn, Survivor winner, cancer survivor, soccer star and all-around awesome guy. I met Ethan a few years ago after he’d been diagnosed with Hodgkin’s. He and his girlfriend, Jenna Morasca (also a Survivor winner!), have completely rallied for the cause and last year they helped put together a kids’ soccer clinic to benefit The Leukemia & Lymphoma Society. Before that day was even over, Ethan said he’d love to be a part of it again this year. But Ethan couldn’t be at the clinic last week because in September his cancer returned. He just got out of the hospital where he had a second stem cell transplant and he's home recovering (I got to see him last week and he looks great). 

Despite his physical absence, Ethan was all over the clinic, which was hosted by the amazing guys at NOGA soccer in Mamaroneck, NY. We sold his children’s soccer books, which he generously donated (see below to enter to win a free copy!), and raffled off some Survivor swag and cool soccer gear. By the end of the two hours, we’d raised $5,000 for LLS. But the bigger success is that the kids understood the mission. They knew why they were there and they knew why Ethan wasn’t. As the 80 kids cycled through the stations, they came to a table to sign a big get well card for Ethan. And at the end of the day, they posed for a photo holding cards that read KICK CANCER’S BUTT (they loved that, naturally). My friend, Ellen, who put the whole thing together said other parents told her they were glad we didn’t gloss over the cancer stuff. When the kids asked about Ethan, we told them his cancer came back and he was fighting it again. And we said the money we raised that day would help others like Ethan get better. We also said he’d be there next year.

Alex, who is obsessed with soccer and pretty good at it for a four and half year old, participated in the clinic (where he must have paid attention because he scored his first goal in his game on Saturday!). On the ride home, he and I had this conversation:

ME: Al, do you know why we’re doing this?

AL: So we can raise a lot of money.

ME: Why do we want to raise a lot of money?

AL: So you can win.

ME: Um, OK, yes, but what does getting all that money mean?

AL: That you raised the most and that you win!

ME: Dude, what’s the money going to be used for?

AL: For sick people who have cancer and need help and don’t have enough money.

ME: OK, yes, that’s part of it, but it’s also to help scientists find medicine for sick people so they can get better faster.

AL: Like you did, right mom? When you had breast cancer last spring.

Um…fortunately I did not have breast cancer last spring. I had leukemia 10 years ago and it’s basically gone. I don’t even know where he heard about breast cancer, but I guess I’m glad he at least understands our connection. Sort of. (He is only four and half, so I’ll cut him some slack.) As a cancer survivor, I do wonder what message to send my kids. They know I take a pill every morning but I don’t make a big deal out of it. They are young so I certainly don’t have to worry about them worrying about me too much yet, but as you guys know, Alex asks a lot about death. I don't want to add fuel to his little fire by telling him I was once really sick and now take a pill that essentially keeps me alive. Though I think it's amazing that I have that pill and someday will explain it all to them, I'm hesitant to be too honest too soon. As a kid I would lie awake at night worrying about my parents getting sick and dying. I obsessed about it. And my parents were both super healthy. If I knew that either of them had had cancer, that would probably put me over the edge. But I’m conflicted. I want my kids to know that part of me, to know that you can overcome obstacles and for them to understand how important it is to get involved and give back. I also want them to be comfortable talking about cancer (something I wasn't as a kid). I think I have some time and I think a lot of this will happen naturally, but I'd love to hear your thoughts. 

And, to be entered to win one of Ethan’s soccer books, leave a comment on the blog with the phrase "Kick Cancer's Butt!" by 5 pm EST Tuesday, April 24, 2012. I will alert the two winners by email at end of day tomorrow and ship you your copy! Take a look at the books here—they are awesome! 

Also, if you’re a soccer fan in the tri-state area, we’re auctioning off two VIP tickets to a Red Bulls game on ebay and 100 percent of the proceeds go to LLS. Check it out.

Learn more about my campaign to raise $100,000 for The Leukemia & Lymphoma Society and watch a video that tells our story!

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Comments (25) Write a comment

I think the conversation you

I think the conversation you had with Alex was appropriate for now. Him and Nora are too young to fully understand everything. If they bring the subject up then you can have a discussion (age appropriate) with them. Other than that I think when they are a little older maybe pre-teen age you can sit them down and explain your story to them. Now, if you were going through treatments and were sick of course I think that would be an appropriate time to disuss with them what you are going through. I don't beleive at their age I would mention anything about death beause I do think that they would worry and be scared.

KICK CANCER'S BUTT!!!!

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Kick Cancer's Butt! great

Kick Cancer's Butt!

great post!

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Kick Cancer's Butt!

Kick Cancer's Butt!

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Kick Cancer's Butt! Wishing

Kick Cancer's Butt!

Wishing Ethan the best.

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Kick Cancer’s Butt!!

Kick Cancer’s Butt!!

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I think you did the right

I think you did the right thing and he will understand the conversation more once you have it when he's older. Kick Cancer's Butt!

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Kick Cancer’s Butt

Kick Cancer’s Butt

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Kick Cancer's Butt!

Kick Cancer's Butt!

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Kick Cancer's Butt!

Kick Cancer's Butt!

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Kick Cancer's Butt!!!!

Kick Cancer's Butt!!!!

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Kick Cancer's Butt!

Kick Cancer's Butt!

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Kick Cancer's Butt! You're

Kick Cancer's Butt! You're doing a great thing, Erin :)

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Don't tell the kids now.  I

Don't tell the kids now.  I see how my own kids remember details and obsess over small things.  For example, 3 weeks ago we missed our bus, but luckily my friend drove us to the last stop in our town and we picked it up there.  No big deal, right?  But since then, Naphtali, 4, wants me to tell everyone the bus wizzed by us.  Please Gd the Gleevac will keep working or gene therapy might cure you.  Until the kids are teens, and as long as you are well, just tell them what you need-like rest on a day of medical tests.

"Kick Cancer's Butt!"

and its ass, too

neocatioLauren

 

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KICK CANCERS BUTT!!! This is

KICK CANCERS BUTT!!!

This is such an inspiring article and moving message to educate your children. I think you've handled talking about everything with them with the perfect amount of poise and consideration - bravo & good luck in your fundraising :-)

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KICK CANCER'S BUTT!!!  Good

KICK CANCER'S BUTT!!!  Good luck in your fundraising Erin!!!

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Kick Cancer's Butt!!!

Kick Cancer's Butt!!!

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Kick Cancer's Butt!  Keep up

Kick Cancer's Butt!  Keep up the amazing work, Erin!  -Helena

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I'm a 38 year old, almost 2

I'm a 38 year old, almost 2 year breast cancer survivor and I agree with Crystal Tolley when she said that the conversation you had with Alex was appropriate. When I was diagnosed in 2010 very unexpectedly, I had the cancer conversation with my two young nephews. They kind of understood (my grandmother had a lung cancer battle 5 years prior) and asked if I was going to die (OMG!) Lol! More recently, I worked in a preschool when I was selected to be in a national breast cancer awareness campagin called Pink Together (my pic is on Cheerios, Total, Fiber One and Cinnamon Toast crunch to name a few products), most of the kids just wanted to know that I was sick, went to the doctor and got better. It's how they relate to that. You're doing fine, but of course as your kids get older they'll realize what a big deal you being a 10 year cancer survivor is! Go Erin and Kick Cancer's Butt!

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Great Post! Kick Cancer's

Great Post! Kick Cancer's Butt!!

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Kick Cancer's Butt. Ethan and

Kick Cancer's Butt. Ethan and Erin - you are both amazing and inspiring.

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Kick Cancer's Butt!   What

Kick Cancer's Butt!

 

What you're doing is so wonderful, I love that you had Alex involved in it.  I think your conversation was very appropriate for his age and I'm sure the conversation will continue to grow as he and Nora get older.

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Yeah! Kick Cancer's Butt!

Yeah! Kick Cancer's Butt!

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Your conversation with Alex

Your conversation with Alex was just right. I don't think that it's necessary to overburden young children with information that they can’t put into perspective. I have to admit that personally, I'm very conflicted about this and have never brought up CML with my son, and he'll be five at the end of the month. When I go out of town for an appointment, I’ve never volunteered the nature of my appointment (nor has he asked). The few times that he has asked me what I was "eating" (when he saw me taking my Gleevec), I have to admit that I’ve copped out and said that they were vitamins. He gets a Flintstone vitamin every morning and that answer suited him fine.

I just don’t want him to have to worry about me at his age. Just to illustrate how at that age they can’t always process all the information that they receive, after Fire Prevention Week at school (September), we spent two months reassuring him every night that the house would not catch on fire. He still sometimes will not want to go to sleep if he thinks that someone is in the kitchen cooking after he has gone to bed.

Kudos on all the great work you are doing to help Kick Cancer's Butt!!

 

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KICK CANCER'S BUTT!!!!

KICK CANCER'S BUTT!!!!

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Kick Cancer's Butt!!! I am a

Kick Cancer's Butt!!!

I am a believer that one must communicate with our kids and for the most part speak the truth, you'd be surprised how much they understand and learn at such an early age. Good luck!

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