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Needing help with my first pregnancy diagnosed with gastroschisis

2 answers
Ian my firstborn is due on Jul.5 and I have read several tips on taking care of him, but still a bit worried that I may be getting the wrong information. If any mother who has experience on gastroschisis please give some advice on what to expect and how to make our Ian comfortable. Also any tips on soothing my nerves on delivery? I'm still working on not letting my motherly instincts to go in shock when Ian is in surgery and the fact recovery may take a while. Thank you!

answers (2)

I don't know anything about this first hand.  I am sorry to hear that your son will have this problem.  I answered this only because no one else is and I know that you want something to ease your mind.  I looked this up. After your son has his surgery and I hope that all goes well.  He should be fine after that.  He will be fed from a tube for a bit, but the odds are stacked high that he will recover with no problem.   I do know about having your child in critical condition at a  hospital though.  My youngest has  a heart condition called Wolff Parkinsons White Syndrome.  At any moment for no given reason his heart rate will escalate and if it doesn't get brought down then his heart could pump so fast that it quits.  He was 2 weeks old when he was diagnosed with that and was hospitalized for a week until they could find and regulate a medicine for him that would help him.  Several times during that week his heart would be going so fast that they had to stop his heart to get it to restart and be normal.  That was the most heart wrenching thing I had ever gone through.  I was always worried that his little heart wouldn't start again.  You will be freaking out about your son in surgery and you will be sad, but think of it this way afterwards he will be fine.  I hope this helped at all.  Again I just didn't want to leave out in the dust without someone saying something.  I hope that at least I have helped with the freaking out about your son in surgery part.
Hi, Im a nurse with pediatric ICU experience. I have taken care of many of these babies. Unfortunately there isn't anyway for the doctors to know how bad your sons condition will be until he is born. Sometimes babies have to much bowel out of their tiny bodies and the doctors are unable to put it all back in safely. So they will in these cases leave some out in a sterile bad and try to push it back in daily just a bit at a time. In the days following surgery the babies' bowels sometimes have difficulty working right. Sometimes the bowels were not well perfused with blood and vital oxygen when they were outside their bodies. In these cases sometimes the bowels die and need to be removed. I hate to scare you but I just thought you should know the worst case scenerio. I think most babies do well but of course the ones that I have seen over the years have been some of the sickest patients. I truely hope that your son's bowels are healthy and fit back in easily for the doctors. Try not to be overwhelmed in the PICU or NICU where ever you are after your son is born. You will feel a loss of control that is so terrible. You can help by bathing your son, changing his diapers. Saving your breast milk in the freezers so he can use it later. You can talk to him, he will know your voice. All these little things are what you should hold on to and know that you are doing all you can to make him happy and healthy and the doctors and nurses have to do the rest right now. Hope this helps, you and your son will be in my prayers.

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