The Short of It
A month-old Alabama baby with a rare condition—no nose, but no other health problems—is touching people's hearts.
Mom Brandi McGlathery had a normal pregnancy and went into labor at 37 weeks.
"The day I delivered, everything went fine," she told ABC News today. "At 4:42 when he was born, he came out and the doctor put him on my chest. When I took a closer look at him, I said, 'He doesn't have a nose,' and they took him out of the room."
After a full work-up, doctors discovered that baby Eli had no health concerns other than missing a nose.
Eli's condition, congenital arhinia, is very rare—it only occurs in one in 197 million babies. It's only been reported 43 times since 1931. In these cases, the babies can experience some difficulty breathing and feeding, but the baby's parents have been trained in ways to help him.
The family has started a GoFundMe page to ask for assistance to pay for the extensive medical testing and procedures he'll need. Friends created a Facebook page to keep everyone posted on Eli's progress.
Just as most moms would do, Brandi first looked to herself as the cause of Eli's facial abnormality.
"I recounted everything I did throughout my pregnancy to figure out if I did something wrong," she said. "I realized it was nothing anyone did. I mean, he's perfect. I'm not going to say I was sad. I was just scared for him because I didn't think he'd make it."
Turns out, there's nothing "wrong" with Eli at all, and he has a great personality.
"He's an extremely happy baby and does cute stuff all the time," she said. "There's a reason aside from his health issue and not having a nose as to why we call him our miracle baby. He just tugs on people's heartstrings. It's his demeanor."
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